Involving individuals and communities in health research

Involving individuals and communities in health research
 

Community conversations for health research


We were commissioned by the National Institute of Health Research (NIHR) to conduct research aimed at removing barriers for underserved groups to participate in health research.

The purpose of the research was to understand the experiences and needs of these groups and individuals connecting to health research, to remove barriers preventing these groups from engaging in research and to work together to develop a plan for future research that addresses the needs of these groups.

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Image taken from the Community conversations for health research report

Community conversation for health research

We spoke to 4 communities to find out their thoughts on involvement in health and care research.

  • Visually impaired community
  • Chinese community
  • Bangladeshi community
  • People who receive care and support at home

Click on the image of the report to read it.

Recommendations

Improve access to research opportunities.

Reach out to different communities via GPs and community groups such as Healthwatch Leeds.

Explain the research benefits clearly to individuals and communities.

Offer flexible participation options to suit different needs, for example, face to face sessions as well as virtual sessions.

Give thanks, for example, gift vouchers.

Follow up with feedback about their participation.

We asked Buttercrumble to create a short visual report to present our findings. We used this report to go back to the groups that we visited to share with them the next steps.

If you require this report in another format, please get in touch. Either call 0113 898 0035 or email info@healthwatchleeds.co.uk

We asked Buttercrumble to create a short visual report to present our findings. We used this report to go back to the groups that we visited to share with them the next steps.

If you require this report in another format, please get in touch. Either call 0113 898 0035 or email info@healthwatchleeds.co.uk

Other formats of the Community conversation for health research report

The groups that we spoke to faced barriers in communication, therefore we wanted to make the report as accessible to these groups as possible. Here you can find a PDF write-up of the visual report and a video, audio-describing the content of the mini-report.
PDF written report

Audio report

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